Tuesday, 14 January 2025

The past five years

Not going to lie this blog has been quiet for a while that's due to health issues, my dad had been going through some serious issues with his health, he was losing anywhere between four to six units of blood due to severe bleeding, nosebleeds mostly but some internal bleeds as well. One of the A&E doctors referred him to a specialist at the Bridgewater Suite which deals with bleeding disorders and he was diagnosed with HHT which is a rare bleeding disorder which affects the blood vessels. in short a patient with HHT doesn't produce healthy capillaries or links with organs from the arteries and instead forms these things called Arterial Vienous masses these things function just like regular blood vessels until they decide they don't and they can cause severe blood loss, clots and if they form in the brain strokes. When they looked into our family history they found that my brother, my uncle, my grandmother and myself all had bleeding issues as I was the only one apart from my dad who'd had bleeds who was still alive they rushed me in for testing and I saw the specialist in 2019 after having had to have six surguries to end bleeds, in 2020 I got confirmation I had HHT. My dad's health continuded to deteriorate and and they tried a number of experimental treatments to save his life sadly he died on Christmas day 2023 after catching Covid which led to complications, he died in hospital the autopsy showed he'd been bleeding behind the gut and that his heart had started to fail from all the blood transfusions he'd had to have in the last two months of that year including five in one week, the heart needs time to recover after a blood transfusion the damage caused by Covid meant it couldn't. Now I'm the only one with it in the family still alive thank God no one else has it